our new web-site!
When dealing with constantly changing symptoms, a totally foreign diagnosis yourself OR someone close to you: it's a comfort to know others have struggled or are still fumbling on a similar path.
That's our purpose. A place to share experience (s), frustration (s), and joy (s)!
It's so refreshing not to have to explain why you move & sound like you're drunk all the time.
If you feel you'd benefit from this type of community: WE WELCOME YOU!
Donald F. Santa Croce
in his prime & in the
throws of Spinocerebellar
died age 42
Frederick Santa Croce in his prime & in throws of
Spinocerebellar Ataxia Type-7
died age 41